Publications Nelly van Uden
PhD-Thesis
van Uden-Kraan, CF. Online peer support for patients with somatic diseases. PhD Thesis, Universiteit Twente, Enschede. 2008
International
- Van Uden-Kraan CF, Drossaert CHC, Taal E, Smit WH, Bernelot Moens HJ & van de Laar MAFJ. Determinants of engagement in face-to-face and online patient support groups. Journal of Medical Internet Research, in press.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Peek CB, Smit WM, Seydel ER, van de Laar MAFJ. Experiences and attitudes of Dutch rheumatologists and oncologists with regard to their patients’ health-related Internet use. Clinical Rheumatology. 2010;29(11):1229-36.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Seydel ER, van de Laar MAFJ. Patient-initiated online support groups: motives for initiation, extent of success and success factors.Journal of Telemedicine and Telecare. 2010;16(1):30-34.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Smit WM, Siesling S, Bernelot Moens HJ, Seydel ER, van de Laar MAFJ. Health-related Internet use by patients with somatic diseases: frequency of use and characteristics of users.Journal for Informatics for Health and Social Care. 2009;34(1):18-29.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Seydel ER, van de Laar MAFJ. Participation in online patient support groups endorses patients’ empowerment.Patient Education and Counseling. 2009;74:61-69.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Seydel ER, van de Laar MAFJ. Self-reported differences in empowerment between lurkers and posters in online patient support groups.Journal of Medical Internet Research. 2008;10(2):e18.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Shaw BR, Seydel ER, van de Laar MAFJ. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis and fibromyalgia. Qualitative Health Research. 2008;18(3):405-17.
- van Uden-Kraan CF, Drossaert CHC, Taal E, Lebrun CEI, Drossaers-Bakker KW, Smit WM, Seydel ER, van de Laar MAFJ. Coping with somatic illnesses in online support groups. Do the feared disadvantages actually occur?Computers in Human Behavior. 2008;24(2):309–24.
News flashes
12 april 2013: KWF Kankerbestrijding / Alpe d’HuZes has granted the research proposal Netherlands Quality of life and Biomedical Cohort Studies in Cancer (NET-QUBIC).
Marieke de Bruijn will defend her PhD thesis on 10 juni 2013 at 15.45 pm.
Support our bicycle team for Alpe d'HuZes 2013!
On 6 June 2013 our team living together with cancer will cycle the Alpe d'HuZes! This in the fight against cancer. At this moment there is already more than 1500 euro donated. Do you support us too?
The 15th World Congress of Psycho-Oncology and Psychosocial Academy will be held in Rotterdam, 4-8 November 2013. www.ipos-society.org/ipos2013/.
29 January 2013. Pink Ribbon has granted a project to develop and evaluate an online training for cancer patients with insomnia (Annemieke van Straten), and a project to develop and evaluate a breast cancer module for the OncoKompas (Nelly van Uden).
Charity Symposium "Living with cancer"
On December 19, 2012 there will be a Symposium ''Living with Cancer''. This is a charity symposium on meaning centered psychotherapy for cancer patients. Read more about it at the tab News at the left.
15 November 2012: Hoe?Zo! Radio interview with Irma Verdonck on stress and cancer.
October 2012: Interview with Irma Verdonck in Psychologie Magazine.
September 9, 2012. Interview Hans van Willigenburg with Irma Verdonck on Radio 5.
August 2012. Five students finish their MSc thesis and graduate as MSc in Clinical PSychology.
June 28-30, 2012: International symposium on Supportive Care in Cancer (MASCC ISOO) at New York. Kevin Yap and Irma Verdonck organise a workshop on e-health and supportive care.
Record for Alpe d'HuZes 2012. The sponsor action Alpe d'HuZes (6 and 7 June) 2012 has already yielded the record amount of 28.5 million euros.
June 6-8, 2012: Our research group contributes to Alpe d'HuZes as volunteers.
April 20, 2012: Nelly van Uden will give a presentation about OncoKompas at a conference about ICT in health care in Barcelona.
March 16, 2012: NVPO congress in Utrecht, we contribute with 2 oral and 2 poster presentations and a workshop.
January 1, 2012: The project POLARIS project has officially started.
December 22, 2011: Radio program DeGids.fm, Felix Meurders interviews Corien Eeltink on sexuality and cancer.
November 2, 2011: KWF / Alpe d'HuZes funds a grant for the development and evaluation of an online intervention for informal caregivers of cancer patients.
October 30, 2011 In the national television program "Gesprek op 2", Daphne Bunskoek interviewed Irma Verdonck on living with cancer.
October 28, 2011: www.oncokompas.nl is online!
October 23, 2011: Alpe d'HuZes hands over more than 20 million euros to the Dutch Cancer Society!
Team work
Our research projects are embedded in the two largest research institutes of VU University in Amsterdam: VUmc CCA-VICI (Cancer Center Amsterdam) www.vumc.nl/afdelingen/CCA-V-ICI/ and EMGO+ (Institute for Health and Care Research emgo.nl
We work closely with patients and their caregivers and with researchers and physicians at VU University and VU University Medical Center in Amsterdam and other research institutes and hospitals in the Netherlands and worldwide. Team work is crucial improving research and translating results into clinical practice.
