Need for and use of supportive care
This study investigated the need for and use of supportive care in head and neck cancer (HNC) patients during treatment and 3-12 months post treatment to obtain insight in possible determinants of the need for supportive care. 84 HNC patients 3-12 months after treatment and 51 partners completed a study specific questionnaire on the need for and use of supportive care (, and the EORTC QLQ-C30 and H&N35, HADS, and a questionnaire on coping style (UCL). The need for supportive care was tested for associations with sociodemographic and disease specific parameters, comorbidity, treatment modality, coping styles, anxiety and quality of life.
The need for allied health services ranged between 18% (physical therapist) and a dental hygienist (32%). Less than 15% of the patients and partners expressed a need for psychosocial care. Less than 10% expressed a need for a patient society.
Regarding complementary care, the most common need was for vitamins, herbs, or a special diet at time of treatment (20%). Discrepancy between the need for and use of care was most often less than 5%,
Funding
VUmc (2006-2012).
Questions?
For questions, please contact:
Inge Oskam, MD, Otolaryngologist
Email: im.oskam@hotmail.com
News flashes
12 april 2013: KWF Kankerbestrijding / Alpe d’HuZes has granted the research proposal Netherlands Quality of life and Biomedical Cohort Studies in Cancer (NET-QUBIC).
Marieke de Bruijn will defend her PhD thesis on 10 juni 2013 at 15.45 pm.
Support our bicycle team for Alpe d'HuZes 2013!
On 6 June 2013 our team living together with cancer will cycle the Alpe d'HuZes! This in the fight against cancer. At this moment there is already more than 1500 euro donated. Do you support us too?
The 15th World Congress of Psycho-Oncology and Psychosocial Academy will be held in Rotterdam, 4-8 November 2013. www.ipos-society.org/ipos2013/.
29 January 2013. Pink Ribbon has granted a project to develop and evaluate an online training for cancer patients with insomnia (Annemieke van Straten), and a project to develop and evaluate a breast cancer module for the OncoKompas (Nelly van Uden).
Charity Symposium "Living with cancer"
On December 19, 2012 there will be a Symposium ''Living with Cancer''. This is a charity symposium on meaning centered psychotherapy for cancer patients. Read more about it at the tab News at the left.
15 November 2012: Hoe?Zo! Radio interview with Irma Verdonck on stress and cancer.
October 2012: Interview with Irma Verdonck in Psychologie Magazine.
September 9, 2012. Interview Hans van Willigenburg with Irma Verdonck on Radio 5.
August 2012. Five students finish their MSc thesis and graduate as MSc in Clinical PSychology.
June 28-30, 2012: International symposium on Supportive Care in Cancer (MASCC ISOO) at New York. Kevin Yap and Irma Verdonck organise a workshop on e-health and supportive care.
Record for Alpe d'HuZes 2012. The sponsor action Alpe d'HuZes (6 and 7 June) 2012 has already yielded the record amount of 28.5 million euros.
June 6-8, 2012: Our research group contributes to Alpe d'HuZes as volunteers.
April 20, 2012: Nelly van Uden will give a presentation about OncoKompas at a conference about ICT in health care in Barcelona.
March 16, 2012: NVPO congress in Utrecht, we contribute with 2 oral and 2 poster presentations and a workshop.
January 1, 2012: The project POLARIS project has officially started.
December 22, 2011: Radio program DeGids.fm, Felix Meurders interviews Corien Eeltink on sexuality and cancer.
November 2, 2011: KWF / Alpe d'HuZes funds a grant for the development and evaluation of an online intervention for informal caregivers of cancer patients.
October 30, 2011 In the national television program "Gesprek op 2", Daphne Bunskoek interviewed Irma Verdonck on living with cancer.
October 28, 2011: www.oncokompas.nl is online!
October 23, 2011: Alpe d'HuZes hands over more than 20 million euros to the Dutch Cancer Society!
Team work
Our research projects are embedded in the two largest research institutes of VU University in Amsterdam: VUmc CCA-VICI (Cancer Center Amsterdam) www.vumc.nl/afdelingen/CCA-V-ICI/ and EMGO+ (Institute for Health and Care Research emgo.nl
We work closely with patients and their caregivers and with researchers and physicians at VU University and VU University Medical Center in Amsterdam and other research institutes and hospitals in the Netherlands and worldwide. Team work is crucial improving research and translating results into clinical practice.
